A Kaupapa Māori approach to a community cohort study of heart disease in New Zealand
Whalley, Gillian; Pitama, S.G.; Wells, J.E.; Faatoese, A.F.; Huria, T.; Troughton, R.W.; Sheerin, I.G.; Richards, Mark; Cameron, V.A.; Robertson, P.; Tikao-Mason, K.N.; Gillies, T.W.
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Citation:Pitama, S., Wells, J. E., Faatoese, A., Tikao‐Mason, K., Robertson, P., Huria, T., ... & Cameron, V. A. (2011). A Kaupapa Māori approach to a community cohort study of heart disease in New Zealand. Australian and New Zealand Journal of Public Health, 35(3), 249-255.
Permanent link to Research Bank record:https://hdl.handle.net/10652/2128
Objective: To report the processes and protocols that were developed in the design and implementation of the Hauora Manawa Project, a cohort study of heart disease in New Zealand and to report the participation at baseline. Methods: This study utilised application of a Kaupapa Māori Methodology in gaining tribal and health community engagement, design of the project and random selection of participants from territorial electoral rolls, to obtain three cohorts: rural Māori, urban Māori and urban non-Māori. Logistic regression was used to model response rates. Results: Time invested in gaining tribal and health community engagement assisted in the development and design of clear protocols and processes for the study. Response rates were 57.6%, 48.3% and 57.2%. Co-operation rates (participation among those with whom contact was established) were 74.7%, 66.6% and 71.4%. Conclusions: Use of electoral rolls enables straightforward sampling but results in low response rates because electors have moved. Co-operation rates highlight the acceptability of this research project to the participants; they indicate the strength of Kaupapa Māori Methodologies in engaging Māori participants and community. Implications: This study provides a model for conducting clinical/biomedical research projects that are compatible with cultural protocols and methodologies, in which the primary aim of the research was Māori health gain. Key words: Indigenous population, ethnic groups, cardiology, heart diseases